About

Once upon a time, I had only a vague concept that there were people who had something called dementia. I knew it was one of those sad things that was out there in the world, but it didn’t effect me or my family, so I didn’t bother to learn about it.

Then my dad developed dementia. I became responsible for his care and well-being . . . And I became frantic to learn as much as possible as quickly as possible.

There was a ton of information to learn about insurance, medical terms and a variety of legalities. Even more pressing though was that I had to learn new rules about communicating and dealing with my dad.

Very often, I felt like I’d been dropped off in a foreign country with no map or knowledge of the local language. The name Passport2Dementia was inspired by that sense of being a stranger in another world.

I started Passport2Dementia to make it easier to share information with friends and family about my dad’s condition. I kept it going for several months but then had to take a break while things with my dad (and with my own health) became overwhelming.

The break turned out to be more than a year and a half long. During that time, my dad died. At the same time, my need to learn about dementia (and other elder-care issues)  turned into a passion to help others. I am relaunching Passport2Dementia in loving memory of my dad and the journey we stumbled through together during the last years of his life.

One purpose of this blog is to share some of what I learned (and what I’m continuing to learn) about dementia and how to deal with it. My other purpose  is to encourage people who have loved ones being lost to dementia . . . To help them look for and appreciate the blessings in this difficult journey.

I’m not a doctor or any kind of dementia “expert” – just a daughter who wanted to learn everything I could about my dad’s illness so I could support him through it. And now I pray that this blog helps others as they journey with their loved ones through the world of dementia.

This was taken a couple of months before Dad died. I was explaining to him was a "selfie" is. He got a kick out of it.  :-)

This was taken a couple of months before Dad died. I was explaining to him was a “selfie” is. He got a kick out of it. 🙂

 

 

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5 responses to “About

  1. I admire your bravery and your determination to support your father in this difficult time of his life. I pray that you will be strong in this endeavor. I want to congratulate you in not hiding this illness in your family and applaud your effort to help educate others in understanding and dealing with this illness.

  2. Susan!! Yay for your blog! I am glad that I got to meet and know your dad when he was in our care. I have such great memories of him and his comments! Let me know when I can share them. I will be having a screening of “Still Alice” here in our theater – I’ll keep you posted. You can be in charge of the popcorn machine! xo from your favorite Memory Care Activity Director!

    • I’m so glad you found my blog! I’ve been meaning to mention it to you . . . Maybe I did? I forget. Appropriate, eh?!! As far as memories of my dad, feel free to share anytime. No secrets here. 😉 LOVE YA!

  3. One of my favorite memories of your dad is when he approached me one morning quite serious. I will never forget that finger pointing at me and the stern look he would give when you knew you did something wrong. He motioned me over. I took in a breath,he kept shakin that finger at me. I said ” Yes Don, what can I help you with?” He said as though he was mad ” YOU have a nice butt!”
    “Oh, thanks” was all I could muster in my surprise. Loved that. 🙂

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